Musings


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Looking ahead can be impossible when you loose someone you love. I welcome you to unite your heart with mine today. We lose the ones we love in different ways. Some fall out of love with us, some abandon us and some unfortunately…die. Of all the losses, death stings the hardest because with death comes a finality. In death lies the impossibly of a reunion with the loved one at least not in this world. However, in death lies freedom. Freedom from all the limitations that life can bring. Limitations of suffering, poverty, distance , time and even … sickness. Death can conjur sad memories… only if you let it. We all experience our thoughts. If you think about something hard enough, you will feel it soon enough. When we lose someone we love, let us be comforted by the life we once shared with them. Let us experience the thoughts about the good times, the happy times, the laughter, the gains, the milestones. This is an important gift from them to us.The privilege of sharing in their joys and sufferings can not be taken away by death. Therefore no matter how death chooses to come, let us experience those thoughts. Let us realise that death is the ultimate end to the journey of all life. There are no timescales. When it’s time, it’s time. Sometimes it feels too short in our eyes but it is long enough for the deceased. “Fulfilment is not found in the number of days lived. It is found in the unquenchable joy that fills each day. Life may be short but the joy that fills each moment makes it perfect!”… Let us allow those feelings take their roots in our heart. The more you think it, the more you believe it. Let us forget the if’s, why’s and but’s that bring tears and focus on the gratitude of being part of the story of what was once the life of the one that once shared our lives. I love you all very dearly and I thank you for supporting us through this most difficult time. So I ask you “Is there any one you have lost to distance, heartbreak or quarrel?” You have the chance today to make your peace with them and be part of their story again. Don’t leave it till too late you never know what lies around the corner. Make that call you if have the time today!   Thank you for reading. Photo credit: Pixabay. You can watch the video by clicking below. Cheers

Death at my door (D.A.M.D) Part 7 Looking ahead after a loss…stay strong!


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Today on the D.A.M.D series, there is a bit of a twist I must say. Did you notice something different about the title today?  I omitted my usual “Musings of a grieving parent” caption. You did? Well done!!!  It is with good reason though. Today, the piece is about a grieving parent but not my muse. It is a poem sent in to me by a very special friend Agatha. I have know her for the type of short while that feels like ages. If you have ever met someone who fills your life with joy and the beauty of her intelligence, then you have a friend like the one I bagged in Agatha. She plaits words and has a distinct voice that pierces through her work. I find myself  feeling very excited every time I read from her. Special thanks to you her for this lovely poem. I am really touched by the words and the web of emotions that I continue to experience overtime I read it. She has a fantastic blog where she shares her special romance with the webs she alone can twist with words. Please make sure that you can check it out here. Its called Black girl wanderlust.  I hope you enjoy it too. The beauty of poetry is the way its meaning transcends all intention. Enjoy! Now. There is a boy-sized hole in her heart That is the twin of the child-sized pain sitting In the pit of her belly. In the pit of her belly Where he first resided before he was Where his sinews were joined with bone And flesh was wrapped around his awesomeness. Now it is an empty room Where the fire of his smile has gone out And the ghosts of his memories flit around in the shadow. II That slight quaver you hear in her voice – No, that is not the sound of shattering glass Nor the hint of quiet desperation as it seeps Through a tightly woven mask of placid acceptance This – this here is the sound of a willow; supple Swaying gently in buffeting winds Safe in the knowledge that though this river swelled, Swelled and burst its banks Though its raging waters lap at her roots like tongues of fire She will not be swept away. They hold firm, her roots; Buried deep in a nest of love   Thank you for reading. You may also like to read other articles like this. They can be found here. Photo Credit: Pixabay.

Death at my door D.A.M.D Part 6 A Poem – By Agatha (Poet and scholar)



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This series was created to share with our readers the thoughts and emotions of a grieving parent dealing with the monumental tragedy of losing a child. Enjoy! TOO SOON TO MOVE ON I woke up this morning feeling like I could take on the world…. However, somewhere along the line, as the day went along, I soon lost all my mojo, All I really wanted was to just have an early night. The problem though, was that it was just noon and nowhere near bedtime. That was how it felt sometimes… on days when I entered grieve mode. Personally, the weekends are the hardest for me. Weekends used to be the highlight of the week for my family until a few weeks ago when Fred decided it was time to begin his exit from this planet. It was the one time all the boys used be together. I remember fond memories with all of us in the little room that was Fred’s cubicle on the hospital ward. Fred, darling Fred… without a care in the world. Mark?  …he would attend the activity centre where he loved to play. Karl and I? …we mostly watched movies to pass the time. We later converged before the end of the day to take Fred on walks as soon as the nurses thought he could be taken out for the day. I honestly would not have done anything differently about our family time. It was so ordinary, yet so special. Now since he passed, the weekends have become quieter. No stressful trips to London. No looking for what to entertain the boys with. No changing diapers. No listening to Fred’s music for the umpteenth time….No stress! That is good right? Well, that was our normal, our routine and “our thing”. This new normal was something I had desired for so long and had given up on ever experiencing. This new normal feels strange without Fred in it. I still feel so apprehensive about settling back into normalcy. I feel like it’s too good to be true. I know that it isn’t and I am teaching myself to relax more. I am trying to unlearn having to wake up constantly to do Fred related chores- diapers, medicines, feeds, safety… I am trying to unlearn being on alert every minute. There are so many normal things that have become strange to me now, but… I am taking baby steps trying to learn to be normal again. Some friends have been asking me “what next?” …. As a matter of fact, make that … everyone asking me and being on my case! I know they mean well and I probably need the nudge but it feels so wrong to treat my Fred…my pain… like a chapter in a book that should be snapped shut. Well I don’t want to. I want to linger on…fiddling with that chapter. I know I shouldn’t but it seems so disloyal to let go and simply…move on as all propose. Did he mean so little that I should move on so easily?The ripples from the blow life dealt me when she decided in her infinite wisdom to let Fred slip away are still so profound that they are still spreading through my every vein… my every heartbeat… my every step. All I want is to savour and hold on to it for that bit longer because they are all I now have left… I know I should be thinking about what my next move should be in this new normal. However, somewhere in my head, I think it is too soon. It just seems so unfair after all the special times we shared with our son that we would just move on so easily and so quickly. I am trying to clutch at them. Sadly as much as I would like to stay melancholy, my brain is moving on faster than I would want it to. That too is a good thing as well right? I have found sleep to be my trusty companion. It helps get me well rested and more refreshed to take on each day. It is just that the weekends are so quiet…. I am going to talk to Karl about this today. I will find out if he is experiencing these emotions too. You never know. Do they not say a problem shared is halved? Perhaps we can find new ways to fill up the silence that is quickly filling up our weekends. The weather is getting warmer too, so perhaps we could even go out on our family walks again. Find new ground because I am not sure that we can possibly pick up from where we left off even if we tried. So if you are out there, trying to cope with the devastating loss of a loved one, I want you to know that we can all get through this! Thank you for reading

Death at my door D.A.M.D (Musings of a grieving parent) Part 5 – TOO SOON TO MOVE ON


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This series was created to share with our readers the thoughts and emotions of a grieving parent dealing with the monumental tragedy of losing a child. Enjoy! THE SPRING CLEAN Our spring clean this year was long overdue and today we decided to start with a clean up of all our phones and devices. The main reason for this as the primary starting point was that unlike other areas that needed a proper clear-out in our lives- given the events of the last few weeks, our devices were the most volatile and dis-organised. We had many pictures and videos which had suddenly evolved from being mere captured moments to becoming treasured moments. The demise of our son two months earlier, meant that he stopped being captured in our moments from then on. Our devices unfortunately were subject to loss or damage. We had to hold on to every memory we could milk off them. There seemed to be a sense of urgency in carrying out the clear-out although I honestly could not tell why. Although having the memories stored in this way kept them to hand, they unfortunately also made us stumble into our son’s videos or pictures very suddenly. Such sudden appearances of his images were sometimes welcomed and comforting but at other times they were very upsetting depending on the state of mind we were in. It became necessary to keep them safe elsewhere. That way we could reach them when we felt readier to confront them. It also had another alluring advantage of freeing up the space in our devices thus creating room for us to capture even more memories as life sadly went on. Interestingly, something happened as we sorted through our devices. Our emotions swung into overdrive. What we did not bargain for were the surge of emotions that came flooding out as we sorted through each memory that each image or video we came across pulled into our consciousness. What started off as an innocent exercise began turning into a gruelling experience for us all. In no time we were in bits. We thought we were doing well and feeling strong emotionally since our loss or why else would we have felt courageous enough to begin this exercise? Each memory seemed to stick us right into a lane in our memories where we stood watching each event depicted by the capture photograph or video unfolding. We wished we recorded each event more or better still that we started the recording earlier. We filled in all the blanks in our minds as we relived each moment with our late son in those photographs. We confronted the foolishness in the dreams we revisited as we remembered nursing them when those images were captured. Would that we could have known what lay just a few years, months, weeks or even days ahead from when we took those snapshots! Our  activity today made me feel like a child pulling at scabs, fascinated by their appearance and yet not knowing the pain that lay ahead after pulling sweetly at it. The allure of curiosity overshadowing all common sense. I wondered if there was even any wisdom in capturing so many images as one walked through life. I questioned the sense in storing them. I missed the power of depending on only the mind to recall memories as was quite customary before all this technology. A time when memories in our hearts faded away with the passage of time until they lost their potency as painful reminders and reduced to just a dull ache. I toyed with the idea of deleting them all but I knew better than to make any decisions while overcome with emotion. As we all tried to get through each last image, I could see us all crumbling but pulling each other along as we talked through the different emotions we were going through. My little strong son Mark said he wished his late brother Fred could visit us sometimes. He made this painful wish in his usual innocent way. My broken heart ground to a pulp as I explained the impossibility of his simple request. He claimed to understand as he sat on my lap in silence while we all put each memory away in the file we had opened in the removable hard drive. With the last one done for the day, we heaved a sigh of relief. The dull absence of the sunshine to warm our hearts clouded up what was left of our day not only in the literal sense but in every way. Afterwards, we switched on some happier songs on the sound system to tune us out of the emotions we had just unexpectedly confronted, I saw again how we began to brighten up even without any sunshine in sight. The torch of hope was kindled again as we swayed to the beats. We knew the importance of letting life go on. One foot in front of the other, one day at a time would mean that surely one day soon the memories would not hurt so badly. We had to trust as we always did that there was nothing without reason. Our boy Fred was safe in the place where not even the pain of his disease could ever get him. So here I am standing between the isles in a shop where I came to as an excuse to get some air. I am staring blankly and wondering if I would ever open that hard drive ever again? I know I am as curious as a cat and won’t resist but that will have to be sometime in the future when I too feel far away from today, far away from the pain, far away from the emotional drain…. Thank you for your time. Hope you can join me again next time! Just so you know, there was Part 3 last week. Click here to catch up. You may also like to read other articles like this. They can […]

Death at my door D.A.M.D (Musings of a grieving parent) Part 4 – THE SPRING CLEAN



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This series was created to share with our readers the thoughts and emotions of a grieving parent dealing with the monumental tragedy of losing a child. Enjoy! BACK IN TIME I keep walking… I keep taking one step after another. I keep putting one foot in front of the other. Sometimes it feels like I can feel my feet being printed in the ground as I take each step.   I walk for dear life. I walk to keep you near It’s the one thing we used to share. I can’t stop myself.   And then came a comforting thought as I walked today….   Perhaps all I need to do is retrace my footsteps. Perhaps all I need is to walk backwards. Perhaps 6 million steps back is all it will take. To get me back to the time when you were here.   I would probably need to walk back in time till I find myself … Till I find myself pushing you along the path we used to thread together. With my eyes closed I can feel your little hand in mine. I can see your big eyes looking up at me. Asking me to lead you on as only I could do.   Come along my love and I will take you to the place you loved. I will guide you to your place of freedom. The place you wanted to be all along….   Now all I have is your song. With your song I make that journey every day. With its melodious tune I am guided back to the time When you were here right next to me humming along.   Now all is quiet but right here in my heart you are never silent. I can feel your presence near. On the strings of the cords that you played. I can see the marks that your fingers made.   I want you back! O how it hurts so…. But to have you back will be to wish more pain on you. My only wish is for you to fly free. Sometimes it’s hard, most times it’s easy   To see your face in the memories we carved on still paper. Feels like my heart is being stabbed with a dagger. But catching that glimpse gives me every reason to be strong It makes me long for you but keeps my heart warm on cold nights.   How can all of life point to the exit sign? How come all we have is a box full of memories? How do you pack up a man’s life in a box? How come it all fits in even though you were larger than life?   But back in time my love is where  I know I have to go Back in time is where you live Back in time is where I go when I want to be with you Sleep sweetly my love…. Thank you for reading. Just so you know, there was Part 2 last week. Click here to catch up. You may also like to read other articles like this. They can be found here. Photo Credit: Pixabay.

Death at my door D.A.M.D (Musings of a grieving parent) Part 3 – BACK IN TIME


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This series was created to share with our readers the thoughts and emotions of a grieving parent dealing with the monumental tragedy of losing a child. Enjoy! ACTUALLY BURYING MY SON I had times were my thoughts were marred by the inconceivable idea of committing him to earth. I thought all sorts. I had all sorts of images about the decomposing and loneliness down there in the grave. As a mum, I felt subdued, helpless and on the receiving end. That was when I decided that I had to take back control of my thoughts. I could not let them control me. I like to think that we experience our thoughts. If we begin to think there is a snake in the room, even though it is not a statement of fact, we soon begin to feel scared or unsettled. I did not want to lose control of my feelings. One of the reasons why death is scary is because unlike most experiences, there are stories about those experiences from those who have been through them that can either throw more light on them, reassure us or scare us. With their accounts, we begin to separate fact from fiction and ultimately gain more understanding about the issue. Death is one experience that by virtue of its finality remains a mystery. No one has actually come back from being dead to tell us about what it is like. There are no real tangible facts. All the facts that exist are intangible explanations that require more than the five senses to make sense of. People tend to adopt a “faith” to help make sense of it. Sadly not everyone has a faith to help.The uncertainty surrounding the death experience fuels anxiety leading to various reactions to death. Shock, fear, grief, loss, anger, confusion and the list is endless. We as humans are made to make sense of things by mirroring them with our past experiences. This helps us understand. So if I tell you that I broke my leg, you are most likely going to remember (draw on a past experience) where you either broke your leg (experienced yourself), nursed someone with a broken leg, or knew someone who broke their leg (experienced by proxy). Either way, you will tend to understand better because you have felt that sort of pain before. Unfortunately, no death experience is felt by any of us directly, it always happens to someone else. This means that we can only make sense of death by thinking about it in the way we can understand. We may worry about how the deceased feels. In my case I worried about my boy being “lonely” in his grave, I worried about his skin “decomposing” and looking horrible. I worried about him being “trapped”, not moving etc… all these are characteristics that affect people who are alive and really nothing to do with the dead. A dead person can feel nothing and therefore can sense nothing because all life is gone from the deceased. The things that lead up to death are a process that release the person into the state of being…. dead. For some the events that lead to their death are peaceful, for others they are tragic. Either way, without these processes, death will not occur. They will then stay alive, just like the rest of us who they have left behind. It is only if the deceased was alive that they would experience the feelings of pain, love, laughter, joy, sorrow, worry and so on. It is important to try to consciously stop trying to make sense of the feelings of the body of a dead person. To stop worrying about how the dead “feel”. That word “feel” is a word that only makes sense when you are “not dead”. The deceased that we think about are in essence “dead” and therefore have no need or ability to feel things. They can neither feel anything on their physical bodies like wounds or decay nor can they feel any emotions like pain or loneliness for example. I prefer to experience a feeling beyond what my senses can call factual to help release me from being imprisoned in by grief. You can think of the dead as free from pain, disease (in my son’s case), free of being limited by whatever circumstance held them down while they lived. It may help you experience happiness amidst the sorrow. It also does not make any factual sense … which is the whole idea of this line of thought. Being dead cannot make sense beyond the lifelessness of the deceased that is left behind for us to deal with. To enter into any understanding about death, we have to find that way to connect interiorly in our being either through faith or deep spiritual exercises. As this may be a feat possible for only monks and mystics, I am afraid, we may be better of leaving the dead well alone. I also saw my son one last time before he was committed to earth and although `I had built myself up for a disastrous experience, it was one of the most emancipating experiences of my life. He had began to transition into a state of oneness with Mother Earth. There was no trace of resemblance with my beautiful boy. He was simply gone! It helped me free him in my heart to be buried. You know when he initially died, he still looked so beautiful and peaceful in the chapel of rest where he lay. Somewhere in my head, it kept feeling like he would wake up. I knew he could not because he was gone but it did not stop me wishing.This increased my anxiety about having him buried. I felt a lot of comfort knowing he was in the mortuary. In my mind, I could only feel comforted that he was “asleep” in death … in that cool fridge. Sadly my emphasis in that statement was on the “asleep” not on […]

Death at my door D.A.M.D (Musings of a grieving parent) Part 2 – THE COURAGE TO SAY GOODBYE



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This series was created to share with our readers the thoughts and emotions of a grieving parent dealing with the monumental tragedy of losing a child. Enjoy! For the next few weeks, I have decided to pen (or type) down my feelings as I walk my way through … and hopefully …walk my way out … of the weight of the emotions that have taken up abode in my heart since my son’s demise in February this year. I, as usual, refuse to let this whole experience be the end of me… but a rebirth. I am absolutely certain that within this circumstance, there will be many lessons to learn. Hopefully many interesting emotions too! I can certainly testify to the fact that I have been swept by many so far.  I will tell you about this one that I feel I have just come through: GETTING HIS FUNERAL SERVICE DONE We had the final service in memory of our son at the St Christopher’s chapel at Great Ormond street Hospital London. It was special. After a lot of e-mails and phone calls back and forth between the chaplain and I, we pulled it off! When Fred died, I was not really sure about how the next hour would be because it hardly made any sense to me. All I knew was that I was not going to let myself worry. The worst had happened and in my mind, everything would be easier…fall into place. Nothing could possibly be worse than his death. I set out asking questions and being initiated into a new world of funerals, flowers, invitation cards, thank you cards and what have you. One by one each activity slipped into place. We were directed to the Coop funeral services by another lovely parent whose daughter had also sadly passed away. She reassured me about how personal and comforting their service was. I knew I had to contact them. Although I had been referred to many other directors locally, I could not shake off the reassurance in this woman’s voice. So I made the call one morning and booked an appointment. The atmosphere was serene and comforting when we arrived. They put me at the centre of all the discussions to my discomfort. As a woman of African origin, it was quite difficult for me to have these discussions when my husband was present. It just felt disrespectful. He was the dad too. Interestingly there was a cultural shift in my favour. My husband was too westernised to care so I ignored the discomfort and let myself enjoy being at the centre of the deliberations. It began to feel comforting that I was being indulged in a sense as the “Mother of the child”. As soon as the signatures and payments were done, the Coop funeral services took over. They handled bringing our boy back home and all I really had to do was focus on giving him the best send-off. The day of the funeral service was a day of remembrance. We had all Fred’s nursery rhymes on cue. We had no hymns per se. What we sang were two of Fred’s favourite nursery rhymes. Row your boat and Twinkle little star. We all shared fond memories of him throughout the service. His lead consultant, Ward sister, School teacher and Former PA to the consultant gave lovely tributes to my boy. There was laughter and love in that chapel that day. It was filled to capacity with all his team. It was amazing that everyone could find the time to come and I will remain eternally grateful to everyone who attended physically. Many hearts were united with us from all over the world… those who could not attend in person. I appreciate all their prayers too. It was also a memorable experience for Mark who now is left without a brother. He kept asking if he could play in the hospital Activity Centre because he had missed not being in the hospital for that reason. It was lovely that everyone who attended made the day special for us as a family. We all felt fired up with strength for the event of the following day which was the day Fred was to be committed to Mother Earth. We did not really want to invite anyone because we were very conscious of what Fred meant to everyone. He was a special cheerful boy and we worried that it would be too much emotionally for some. On that sunny Friday morning, we arrived the Cemetery all set to go on that final walk with our boy. But guess what? We met all the nurses in his Local team right there waiting to walk with us. It was amazing. His consultant was in attendance, some  representatives from GOSH, even Mark’s class teacher attended. We also had friends, Family, Fred’s school Driver, people from his school….we were blown away. Now I am sitting here this sunny Sunday afternoon thinking about how blessed I have been because of Fred. He drew all these people into my life. All this love, comfort and support network now surround me. I am blessed because he was mine. I feel honoured to have been the one who bore him. We hope to learn more about Propionic Academia because Fred once walked this earth. His life may have been short, but it was long enough for him. This is a vote of thanks to everyone who has stepped into our life in the last 4 years. We love you all. Not forgetting all of you online who have supported us through this most difficult time. We appreciate you too. Thank you for reading If you enjoyed this, you will find more articles like this here Photo credit: Pixabay  

Death at my door D.A.M.D (Musings of a grieving parent) Part 1 – THE FUNERAL SERVICE


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I wish I could take all the pain, all the hurt, all the struggles you have all been through all this time. I wish I could wipe it all away and make everything okay I wish I could tap you, wake you up and then we will all be happy that it was all a dream. But my love it is real, so real it hurts so bad. I can’t do that- make it go away as much as that is all I want to do. What I can do though is take your hand in mine and sit right here beside you. Although I am miles away I will do my best to be here for you as best as I can. What I can do is be here for you and ask you to let me know what you want me to do What I can do is pray for you and all the family especially during this trying time. What I can do is stand by you and make you know that I care too. This life is a puzzle with more questions than answers. It is ok to feel relieved by the knowledge that she is now gone, now free, now at peace It is ok to know that she has no more pain and she is now at rest It is ok to be reassured that because she lived a good life, she must be now resting with our lord It is ok to lay awake at night in tears and only long for her It is ok to wonder where she is now and if she is fine there It is ok to wish you could see her one last time to tell her how much you love her But one thing is sure she knows and never doubted how much you all cared for her She is not alone but in a better place where she can soar like an eagle Though you are far from her, she is in a better place where nothing can hold her back. Though we can’t see her now, she is waiting for us until we are all reunited with her never to be parted again Though she was weak and frail, she is now beautiful again. She is now stronger than she ever was. She is now our angel interceding especially for us all What we can do now is remember her as she was. What we have now are all the memories of her from the first time we set our eyes on her and felt her warmth to the moment    we said goodbye. Keep in mind that when the ones we love answer the sweet call. They are set free. No longer   trapped in a body, in a place or restricted by time. So we can carry them around with us in our hearts and never be far away from them. Let us not dwell mainly on all her pain and tears (though we will never lose sight of them). Let us at this time remember all her laughter, all her achievements, all her successes, all her struggles ,all her joys. Let us not only remember the pictures of her that were the most recent ones Let us not only dwell on the pain we could not save her from. Let us not only remember the things that make us cry. We will celebrate her life in total. Let us flick through the album that was her whole life….every day, every moment both those we shared with her and those she had by herself I cannot imagine the way you all feel now. But I can assure you that it will get better. There will be smiles again in your home when you think about her. Time will make everything better for you all. Try not to drown in this grief as large and as deep as it is. Don’t suffer alone… Let   those you love in. They only want to help. The only want to be there for you in the way they can. They may not always get it right but at least let them try. It is true that we all may not know how you feel but it doesn’t stop us all caring. If you reach out we will be here to catch you, to hold you. But we too on our part will let you work through your emotions and feelings the best way that you can. Only know that I am here if you need me. God will bless and console you during this difficult time. May her beautiful soul and the souls of all the faithful departed through the mercy of God Rest in Peace….. Amen Thank you for reading. You may also enjoy some of my musings here Photo credit: Pixabay  

Take heart my love…