An Ode for Otito as he turns 4…Dedicated to every one who has ever supported us.Thank you!


I remember when Otito was born…

Life went wrong. We felt lost. In an instant everything came crashing down on us. We were at the centre trying to make sense of it all. A simple birth had turned out to be a disaster… One that was heading in the direction of the disaster we had a few years earlier.

At times we reached out to others but it felt like the more we did the more we were misunderstood. Social circles disappeared, best friends walked away. Not because they did not care but because they could not care. They lacked in them the ability to be for us the comfort we sought in the new circumstance we found dictating our lives. It would have been easier to bury our head in the sand and pretend that by locking away our feelings, our problem will disappear and Otito will be perfect. But we knew that although the ground we stood on was sinking, we still had to find a way.  It was only then that we were able to raise our head up from the sand.

That was when we understood that we were never alone to start with. We were surrounded by people who wanted to help. They were all new to us, but they could only take our hands if we reached out.

That is what we saw when we found you ….

We saw your smile and it gave us hope. We heard your voice and filled us with joy. It was not the kind of joy or hope that made our pain go away. It was rather the kind that melted away the fear. You have stood by us from near and from afar. You look after us as a family. To you it’s just a job. To us it is a lifeline, a job only you do best.

We know sometimes you get it wrong and nobody said you were perfect but the fact that you keep trying means Otito’s life is what fighting for.

You see, you came into our lives when we were at our lowest. We thought all hope was lost when our son Otito was diagnosed. But you did one beautiful thing. You never hid anything from us about the full extent of our reality. We have never felt ignored, fooled or taken for granted. You have treated us with respect and preserved our dignity as a family in more ways than one. The more we reached out to you, the more you stood firmly by us. Always reassuring and never pushing us away. We could never have carried this burden without your expert help and strength.

For this we are thankful….

The end of the year for most people ushers in the yuletide season but for us it means way more than that. It is always a time of reflection for us as a family… a time when our consciousness is drawn to how lucky we are to still have Otito in our lives. The end of this particular year marks the fourth year in the fight to keep Otito alive and stable. It has been by far the most difficult year for him as a person. In our eyes it has also been the year when the depth of your knowledge about his condition has been tested the most, weighed on a scale but never found wanting. There have been times when we have wondered about the sense and worth of this fight…times when the illness has made Otito less of a boy and more of a patient. Times when he has been reduced into a literal ball of pain curled up in his cot. At those times our strength has been drawn not just by Otito’s zest for life but by the reassurance of your expertise and unrivalled professionalism in carrying out the duty of care to him.

We have found our way as a family. We have found our rhythm during this most difficult year but never without you all being beacons shining brightly and pointing us in the right direction.

There have been those who touched our lives in ways that have not been medical but which we have found invaluable. Some found us and touched our lives without even knowing us directly. Although they remain far away from us, their contributions and works of charity have doused the fire of stress and chaos that sometimes envelop us as a family. Their efforts have nearly eliminated our confusion and struggle at times. Some others have supported us emotionally, psychologically and even spiritually with their prayers.

We thank ….

Rays of sunshineGosh CharityFamily fundNewlife CharityCampbell burns trust…Just to name a few… You plastered a huge smile on our faces when you touched our lives and spilled that ray of hope in Otito’s life. Let your benefactors know that your drops of kindness to us although little to you, were big enough to enlarge our ocean of love and support. He may never personally understand your kindness but we see his positive energy and know that if he could he would appreciate you.

We thank you all…

For everyone who runs, walks or clicks their glass to different charities we want you to know that your kindness has touched us in different ways and made us believe that love and kindness still reside in this world. We thank the huge online community who have supported us by reading, liking and sharing the content on our website. Your kind comments and e-mails have meant the world to us all here at the Whispering Hope HQ. We also thank The Naked Convos for providing us with a good constructive distraction.

We say thank you….

As we step into this New Year with Otito, we have no idea if our rollercoaster ride with him will be bumpier than we are used to. What we hope for is that however high or low it goes, it should be smooth. We know we’re not alone and trust in your presence directly or indirectly in our lives. We enter the year with hope garnished with positive affirmations and cautious optimism.  One thing we have learnt from Otito is that we must push on no matter what life throws at us because although this may sound very silly, no matter how tough the going gets, Otito’s little finger constantly presses the next song on his Ipad. For this same reason, we as a family must keep forging ahead.

No thank you card will be enough to convey our gratitude to you all. Our joy today should be yours too. There will be no gratitude today if you were not on the other end of our lives caring for Otito with us. It is our hope that by this medium, you will know that in addition to all the feathers on your cap, this is another… Otito still lives and smiles today as he turns 4 and it is all thanks to you!

Cheers!

Photo credit Pixabay

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