Daily Archives: March 1, 2017


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RAINFOREST WARD It is a time in my life that I can never forget. I first walked through those doors 4 years ago when my son Otito was born. He had gone straight into coma and our world was shattered. A simple birth has turned into a nightmare. At a time when we were trying to make sense of the diagnosis, we walked into the loving and welcoming arms on rainforest ward. It’s a ward unlike any other at GOSH because I have been through many wards along the way with my boy unfortunately. There is a personal touch to the care you get on Rainforest ward. The culture and atmosphere is exemplary. The staff there are a team. There is a feeling of peaceful coexistence and healthy rivalry. Not the usual cut throat competition that is quite common in some female dominated professions. In the last year, it became my son’s home- our second home. He was looked after and loved on Rainforest ward. I often wondered if he would ever adjust to life at home after being spoiled by the nurses who loved him to bits. Now and especially at this time, I look at those doors behind me with fondness. Although he never made it back home, he was at home there. When he was there, he was less of a patient and through the year that was to be his last and in their care, we saw more of the happy little boy that he deserved to be. That gives me peace. The interesting thing about hospital life is the unintentional intertwining and inter-mingling with so many people. You learn to get along with them and adjust to all their qualms. In the end, a peaceful coexistence ensues. I remember good times and sad times in equal measure. I resist the urge to sway towards being stuck in the sad times. Instead, I deliberately swing the bias towards the happy times. Otito brought these wonderful people into my life. Had I not birthed him and nursed him through the roller coaster years, I would have remained oblivious to the reality of the wonderful team existing behind those doors. For this I am thankful. When Otito passed away, I saw all the pain and I watched the tears flow through their eyes and I felt very lucky to have them all in my life. Sharing the pain with these team of love made it easier to bear. No epistle can convey how tough the last year has been. However, in the company of the staff on the ward, I felt like they witnessed my struggle and no explanation was required. Therefore I could just get on with trying to make sense of what had unfolded. Rainforest ward was our ward. I made and formed new friendships with many parents that I can never forget. You see, there is one privilege of having a tumultuous life as I have had. You begin to see that many things are overrated. “Friendship” is one of those. Sadly, many long formed relationships fizzle to a trickle. Phone calls reduce to faded chat lines until they become history. This is usually not intentional but it happens anyway. Having a sick child can take you into a different league. You begin to have less common interests with old friends until you drift apart. Old friends cannot identify with your new reality. Trying to get their attention may keep you spinning until you are saddled with so much emotional baggage at a time when you need less stress. I had a friend once think that I was lying when I said my son was sick- again. My supposed friend in not so many words said “Like seriously, how can someone be so unwell?” before ending the statement with the usual “bless him”. On the other hand, I also experienced the helplessness from friends who would have loved to help but did not know how or were too far away. I made new friends on rainforest ward. When I did, the gap was filled. I did not mean to make them but they happened because they could feel my pain. We were in the boat together. Somehow they got it! It was a comforting relationship. We all were united in the struggle and pain we felt for our children. We were fighters and pulled one another along the way. We shared tips and tricks depending on what we had learnt. I am sitting on my sofa now missing them all. Somehow like before, I know that no matter how I try, life will happen again and the calls will fade because we are now in different worlds. We will begin to have less things in common. My day will probably begin to have different events. I may start to feel insensitive when I call to moan about my new challenges and you may start to call less because you do not want to disturb me with your Parent Caring challenges. But it doesn’t have to be that way because no matter what happens, I will always get it. If you have walked this path, you are never the same. It changes your life positively if you let it. You become more sensitive to things you never could have thought you would even notice. One of the mums gave me a life time membership of the Parent carers club. Like an invisible alumni. It was comforting because it really feels strange being “normal” again. I feel like a bit of a cheat- being relieved of my duties so suddenly! For the first time yesterday, I experienced something weird. Before I tell you what it is, I will take you down my lane of memory to help you understand why it felt wierd…. In 2012 when I watched the London 2012 opening ceremony, pregnant, I saw a display by “Drs and nurses at Great Ormond street hospital” and thought -Awwww, bless. God help “those” people. After that, […]

Rainforest Ward…Otito’s final home. (A thank you letter to all the teams that made his last year special)