Daily Archives: June 18, 2016

long road
It had been another hectic day on the hospital ward. I arrived with my son the previous day. It was meant to be a test at our local hospital to understand why his tummy was hurting so much. But with Fred, nothing was ever straightforward. I had dropped Mark at school that morning and noticed that Fred looked a bit off colour. I decided not to get him ready for nursery. Luckily, he was not bound by law to go every day. To be honest, I let him start nursery at an early age in order to give me some respite amongst many other reasons. Fred was not the easiest child to care for. He was born with a rare disease that left him having more hospital visits and admissions than you could count on your fingers. He went to a specialist school. By now, every single person who cared for him, or had any dealings with him knew all the warning signs to look out for before his health deteriorated. Everyone had my details on standby and I must confess, I had been called out one too many times and it had got to the point where nearly every other phone call on my cell was ‘Fred’ related. On this occasion, I decided to avoid doomsday by just keeping him in and letting him rest. However, as the day progressed, he seemed to be getting worse. By the time I took him in to our local hospital, it was decided that he had to be transferred to specialist hospital in the city. That was never good news. Apart from the meaning that Fred was more unwell than we thought, it also meant, we all had to travel regularly. That in itself was not a problem but for a family with another son in primary school, a dad working out of town, it always took its toll on me psychologically. All I could see was the road ahead. So all through my journey in the ambulance, these thoughts kept flooding my mind. Each blare from the siren offered me no respite from the throbbing ache that was developing in my head. I had to get him settled into the city hospital which was an hour drive from home. I hoped to get back in time to collect my boy Mark from school. I looked at my watch and panicked. It was nearly the time for his school to close for the day. I called Mark’s school and advised them of the situation. The lady was very understanding and promised to hold him for an extra hour after school closure. I immediately sent an email to Karl hoping he would see the message early. Poor guy! Surely my message was bound to worry him. I hated sending him such alarming mails. Unfortunately, I had no other choice as I could not be in two places at once. I received a beep on my phone. Karl wrote “Honey try not to worry, I will sort Mark out, I am leaving the office now”. That was just the kind of message I needed. Wow! The odds of getting such a prompt response from Karl were very slim as he worked in a very busy bank as an executive financial analyst. I felt a bit settled and looked across the ambulance towards my sedated son who looked so peaceful as he slept. I took a cue from him and did the same. I had no idea how the rest of the day was going to unfold. I felt the tap on my shoulder and was jolted back to reality with the words “Wake up, we are there now”. I am sure that I must have slept for an hour. ……………………………………………………… I was so worried about Karl’s work. Day and night I constantly worried. He on the other hand always seemed unperturbed. We had a Christian upbringing and had learnt never to doubt the constant care that God has for us as his children. However, the past few years had taught me how to be more realistic than faithful. We seemed to have been through more upheavals than a tsunami. While I still had faith, my love for God seemed to visit “specsavers” regularly and so it saw very clearly. One thing was for sure, things were going to keep happening to everyone good, bad, faithful or faithless. I also believed strongly that God had no time to descend his throne to do something that was well within our power to achieve. Karl and Mark came to the hospital the next morning to see us. My husband had tactfully taken the day off work. Tactless because, as far as I was concerned, he needed more than a mere call to this Jimmy Furnace of a boss to do that. I just hope this “Furnace” of a man was not going to get Karl burnt one day in that office of theirs. “I hope you sent an email to your boss” I asked, “before taking the day off”, I added. “You worry too much”, he retorted sharply in a tone that meant, “can’t you trust that I have sorted it?” I was glad to see them both. God knows I needed a cuddle after the kind of night I had been through with my son. I had been given more news by the doctors that seemed worse than all gloomy news one had become accustomed to on the telly these days. The doctors and nurses came with all shapes and sizes of instrument to get all kinds of samples from my son. Blood, stool, urine and I thought they would have made him “spit” a sample if they could. It was all so overwhelming. He lay there helpless with tubes, wires, drips and anything they had to offer him. “Hey mom” Mark said “do they have toys here?” I just giggled because my poor boy was still a child after all. He could not really understand the […]

The long road – Part 1